Roaccutane update na maand 1 + foto’s

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Inmiddels heb ik mijn eerste maand roaccutane/isotretinoïne achter de rug. Na een traject van 12 weken doxycycline (antibioticum) te hebben geslikt in combinatie met metronidazol, heb ik samen met mijn dermatoloog besloten om te proberen mijn Rosacea onder controle te krijgen met behulp van isotretinoïne (wat vroeger roaccutane heette). Ik ben gestart met een dosis van 20mg per dag. In deze blog vertel ik je over zowel de werking van het medicijn, als de bijwerkingen daarvan, in de hoop dat je er iets aan hebt.

Disclaimer

Knoop alsjeblieft goed in je oren dat iedere huidsituatie anders is en iedereen anders reageert op dit medicijn. Afhankelijk van de dosis per kg lichaamsgewicht, de algehele gezondheid, de gesteldheid van je lever, je dieet en andere leefstijlfactoren heeft dit medicijn op iedereen een andere werking. Hoe dit traject voor mij verloopt is dus puur op mij van toepassing; ik kan je helaas niet vertellen hoe het voor jou zal werken.

Ga voor informatie altijd bij een arts te rade; zelfstandig gaan dokteren raad ik TEN ZEERSTE af.

Echt lieve mensen, please take this shit seriously. Roaccutane/isotretinoïne dient altijd voorgeschreven door én onder begeleiding van een arts gebruikt te worden.

Ik zal je eerst een algehele samenvatting geven van mijn eerste maand, waarna ik per week de werking & bijwerking van dit middel beschrijf.

joy rosacea roaccutane isotretinoine huidstruggles skin trouble

Maand 1

Van tevoren ben ik uitvoerig ingelicht door mijn dermatoloog over de mogelijke (bij)werkingen van dit middel. We hebben een goed gesprek gehad en ik heb zo’n beetje een dozijn documenten ondertekend waarin ik bevestig dat ik niet zwanger zal worden tijdens het gebruik van dit middel. We hebben het gehad over de mogelijke mentale effecten van het spul, dus ik was redelijk op de hoogte van de mogelijke effecten voordat ik begon.

Bijwerkingen-bingo

En dat is maar goed ook, want al in de eerste week kon ik bijwerkingen-bingo spelen met de bijsluiter. De droogte zette snel in (lees: ik rende op dag 2 naar de drogist voor een flinke voorraad lippensmeer) en ook de pijn in mijn spieren en gewrichten was in de eerste week al te merken. Ik voelde me zo slap als een zacht gekookt ei.

Da’s vrij rap, als je weet dat ik met een lage dosis (20mg/dag) gestart ben. Maar de dosis is afhankelijk van je formaat en aangezien ik zelf niet zo groot van stuk ben, is het wel logisch dat ik al snel zoveel merkte.

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The purge

Naast alle bijwerkingen wist ik ook dat alles eerst erger zou worden voordat het beter wordt, en dat gebeurde ook. Roaccutane/isotretinoïne verandert de structuur en het formaat van de talgklieren, dus alles wat er nog in zit, moet nog naar buiten worden gewerkt. Op fora en blogs uit het buitenland wordt dit ‘the purge’ genoemd.

Daar kreeg ik dus ook ‘last’ van. Voor iedereen om me heen misschien minder prettig om te zien, maar voor mij een teken dat er wat gebeurt. En dat is goed.

joy rosacea roaccutane isotretinoine huidstruggles skin trouble

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Progressie in golfjes

In week 2 en 3 hield die verergering van mijn plekjes en uitbraken aan, waarna ik in week 4 opeens een rustiger huidje kreeg. New skin, who dis? Ik was vet blij. Hallo gladder gelaat!

Het was alsof mijn lijf eindelijk een beetje gewend was aan de dosis en dat was fijn.

Aan het einde van week 4 werden de plekjes weer roder, groter en geirriteerder, maar toen mocht ik gelukkig ook weer op de thee bij mijn dermatoloog voor de controle. We bespraken de (bij)werkingen, ik gaf aan dat ik het allemaal best pittig vond, maar dat ik wel blij was eindelijk effect te zien. Hij gaf me de optie om de dosis te verhogen naar 30mg per dag, met de afspraak die verhoging te staken als ik de bijwerkingen niet zou trekken. Ik liet mijn lever checken, deed de zwangerschapstest en kreeg daarna groen licht. 30mg/dag, here I come!

Over een maand breng ik je de update over deze vier weken met verhoogde dosis 🙂

joy rosacea roaccutane isotretinoine huidstruggles skin trouble

Overzicht van de (bij)werkingen

Start: 20mg per dag

Week 1

Effect: Vettere huid, witte puistjes, onrustige huid.

Bijwerkingen: neerslachtig, misselijk, buikpijn, hoofdpijn, algehele malaise, pijn in gewrichten (handen, polsen, knieën), minder kracht en vermoeid, haar in een staart of knot dragen is pijnlijk

Week 2

Effect: Vettere huid, vooral grotere poriën en meer talg, soort van ‘purge’. Zooi komt naar buiten

Bijwerkingen: droge lippen, droge huid, neerslachtig, hoofdpijn, misselijk, buikpijn, pijn in grotere gewrichten (bekken/heupen) en spieren (bovenbenen), droge ogen, blauwe plekken, haar in een staart of knot dragen is pijnlijk

Week 3

Effect: Steeds droger wordende huid, velletjes laten los, schilfers, maar ‘plekjes’ worden kleiner en drogen in

Bijwerkingen: droge lippen, droge huid, héél erg down, vergeetachtig, rode en gevoelige huid, pijnlijke steken in mijn lever

Week 4

Effect: Drogere huid, plekjes herstellen in golfbeweging maar worden over het algemeen kleiner, er komen geen nieuwe ‘ontstekingen’ bij

Bijwerkingen: minder down, nog steeds misselijk, droge lippen, plekjes blijven rood en weinig energie, maar verder lijkt het stabiel

Voor verdere vragen en aanvullende informatie kun je eveneens het beste met een arts gaan kletsen. Deze uiterst subjectieve single case study geeft mij niet genoeg kennis om vragen – buiten mijn eigen situatie om – goed genoeg te kunnen beantwoorden.

 

 

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    Hoi Joy! Super dat je dit deelt!! Ik heb dit middel een paar jaar geleden ook gebruikt, ook na al zoveel andere behandelingen. Toen had ik wel gewild dat er eerder iemand was die zoiets had gedeeld.. toen amper informatie van gebruikers. Dit was ‘de laatste hoop’. Ik herken veel aan je eerste maand! Ik heb er nu, ruim 8 jaar later, nog steeds profijt van! Huid is echt veel rustiger en alleen nog af en toe eens een puistje of plekje, maar wie niet! Dus hou vol, ik hoop dat je uiteindelijk hetzelfde resultaat gaat halen! Heftig proces maar de moeite waard. Sterkte 💪🏼
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